Nov 12, 2021
In this interview, I sit down with Rita LaBarbera and Tamara Gurin, two former CRPS (complex regional pain syndrome) sufferers who are now both devoting a big part of their time and work to bringing hope to people with similar ailments. Rita and Tamara talk about the plight of patients who do not have just one symptom and how the literature focuses so much on back pain that some can feel even more discouraged about their ability to get better.
Both describe their stories here and each are harrowing tales of crippling pain experiences and the seeming loss of all kinds of function and hope. Luckily, Rita and Tamara each found their way and even found each other on the TMS Wiki, which calls to mind how important it is to continue building community among pain sufferers so we can support each other and continue to bring hope to the sometimes difficult process of recovery.
Rita talks about being a mind body coach now, while Tamara shares more about the book she wrote on CRPS (Complex Regional Pain Syndrome) — formerly known as RSD (Reflex Sympathetic Dystrophy). They partnered and created a website where they share their knowledge and success stories with CRPS patients: http://www.defeatcrps.com. Both echo the sentiment that, while doubt can be larger with such a symptom profile, it really is no different than the other symptoms and that this is a message the entire pain and symptom sufferer community needs to hear in multiple ways.